A boy with a rare genetic condition which meant he was unable to take food by mouth until he was five years old is joining his family and other fundraisers for a walk in aid of the charity that helps him.

Harry Beck, 13, of Idle, is one of only two people in the UK with a particular type of myotubular myopathy, which causes muscle weakness and complications with breathing and swallowing.

Last year he, his parents and his sister, Hayley, did the Hope Walk which raised about £3,000 for the Myotubular Trust. They were joined by Emmerdale stars Natalie Anderson and Matthew Wolfenden.

This year’s Hope Walk takes place on Sunday, May 13. Anyone wanting to take part is asked to meet at the Railway Hotel, Rodley, at 10.30am and the walk will start at 11am, following the canal towpath to Apperley Bridge for a refreshment stop then returning to the Railway Hotel.

“There is no Government funding into Myotubular Myopathy so fundraising like this is the way forward to one day finding a treatment or even a cure for this horrible condition,” said Harry’s father, Gary Beck.

For more information, visit myotubulartrust.org.