'DELIGHT and relief' - those were the emotions of an Otley family after health chiefs finally signed off on a deal meaning their son can keep receiving life-changing medical treatment.
The National Institute for Health and Care Excellence's recommendation of Vimizim today means seven-year-old Sam Brown can now look to the future with some confidence.
The Whartons Primary School pupil - and others with the genetic condition Morquio Syndrome - have been waiting for more than a year to hear if the drug would be provided through the NHS.
NICE's announcement means that will now happen under a five-year, fixed-fee agreement between the health service and manufacturer, BioMarin.
The six-year-old's mother, Katy Brown, said: "We are relieved and delighted and would like to thank our local community for the incredible and humbling support we have received during the past year.
"We would also like to thank our MP, Greg Mulholland, and the MPS Society, without whom none of this would have been possible."
Mr Mulholland (Lib Dem, Leeds North West), who has been leading the #FundOurDrugsNOW campaign, said: "This is exactly the news we wanted and I am delighted for Sam and all the people with Morquio, who will now get access to the treatment they need."
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