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Learning Disabilities Hospital Support is new advice body
A Bradford mum is looking for £5,000 sponsorship to win charity status for a new nationwide advice group.
Maralyn Adey came up with the idea for LDHS (Learning Disabilities Hospital Support) after her 27-year-old son Kristian, who has Down’s Syndrome and heart and lung problems, spent eight weeks in hospital with a brain abscess.
She said the family’s experience while he was a patient at Leeds General Infirmary was not easy because it was blighted by a lack of communication between consultants and a lack of information passed on to ward nurses.
She has already worked with Leeds Teaching Hospitals Trust to create a Patients Passport which travels round with the patient containing vital care and needs information.
This week she is also helping to make a training DVD with the Trust for its staff.
Chief Nurse at Leeds Teaching Hospitals, Ruth Holt, said: “Maralyn’s work to raise the profile of the importance of ensuring hospitals understand the needs of patients with learning disabilities has been a great help. We have been delighted to work with her.”
She now needs the £5,000 fee to get the charity off the ground and attract funding.
“It’s only me and my husband and a few other volunteers at the moment running it and we’ve had a website designed for free but we really need that £5,000,” she said.
To help support LDHS visit ldhs.org, e-mail info@ldhs. org.uk or call 07770882404.