A TEENAGER whose medical condition is so rare it has no name is doing well after having a bone marrow transplant.

Ethan Greenwood is recovering in a specialist bubble unit while he builds up his new immune system.

He has now been allowed out of his highly-sterile room for a walk for the first time since he had the procedure on June 11.

The only hope of the 14-year-old leading an ordinary life was to have his old immune system destroyed and replaced with a new one - he had surgery earlier this month.

The Guiseley boy's life-threatening condition had been attacking his stomach, pancreas, liver, spleen and both his lungs, which were only working at 30 per cent capacity.

Ethan, who is at Newcastle's Great North Children's Hospital, started having hospital tests three years ago when he was struggling to eat.

He had been checked for leukaemia, a terminal cancer, Crohn's disease, tuberculosis and HIV - still leaving doctors baffled as to why his immune system was so damaged.

Ethan's mum Sharon Greenwood, 45, of Fieldhead Drive, Guiseley, has been by his side in the highly sterile bubble room where he has to stay until doctors are satisfied his immune system is ready for the outside world.

His dad Wayne Greenwood, 46, has been visiting at weekends while friends and supporters have been organising events to help Guiseley High School raise money for a campaign called The Bubble Foundation UK at bubblefoundation.org.uk

The campaign supports the unit where Ethan is being treated. His special room will have its own nurse's station, a private bathroom and television.

Bone Marrow transplants have an 80 per cent success rate, which means Ethan could be cured although it could take months and even up to two years.

Ethan's family, friends, Walt Disney stars and superheroes had a fun event for the Bubble Foundation at Bradford Ice Rink last Saturday and are hoping to have raised £1,000.

They are also planning a fun day at The New Vic pub, Bolton Hall Road in Bolton Woods on Saturday, July 18 from 4pm onwards to raise more funds.

One of the organisers Dawny Robb, of Old Park Road, Greengates, said: "Ethan is doing well but it'll take a bit more time to see how the bone transplant is working. He's a typical teenager so it's difficult being in the same room all the time but he's seeing his family.

"His mum is up there with him during the week.

"Our fundraising is doing great, people have been so generous. We know that will mean a lot to Ethan and to the Bubble Unit he is on. Ethan has messaged me to say they let him out for a walk for the first time since his transplant . He still had to wear a mask but we think it's great news."

Fundraising inspired by Ethan has topped £2,000 so far. His justgiving page is at justgiving.com/Ethan-Greenwood2