A Bradford hospital worker is on a five-year mission to help raise £100,000 to build India's first holistic haemophiliac centre for children.
Lucky Kaur, whose daughter Anita Rani is a roving reporter on the BBC1 One Show, is hoping the building of the centre on a plot of land in Pune will be made possible by the generosity of people both in her home city of Bradford and in India itself.
She has already rallied the support of a group of women in India, including doctors' wives and others with business and professional links, to bring in the money desperately needed.
And on April 17, which is World Haemophilia Day, she will be hosting a charity dinner and entertainment night at The Dubrovnik Hotel in Bradford, to get the ball rolling.
Mrs Kaur, who is 60 and works at Bradford Royal Infirmary as a liaison officer, first got involved with the Haematology Society of Maharashta, in Pune, years ago when it was twinned up with the Bradford Haemophilia Centre at a meeting of the World Federation of Haemophilia.
Haemophilia is an inherited disorder where blood does not clot.
If left untreated, internal bleeding in haemophiliacs can cause swelling in joints, leading to pain, deformity or death.
When consultant haematologist Liakat Parapia, who used to take out medication and spare equipment from Bradford to cash-strapped haemophilia awareness camps and clinics, retired Mrs Kaur kept up the work as best she could, determined not to stop the support.
In January Mrs Kaur went to Pune, three hours from Mumbai, to see the land bought for the new holistic centre, which will eventually treat young people up to the age of 30.
There will also be accommodation where patients and family can stay, as some will have to travel hundreds of miles to get there.
There are 740 children registered with the existing diagnostic centre in Pune, but more are getting diagnosed every day, said Mrs Kaur.
“While I was there I met many children with haemophilia. Just to see the smiles on their faces because they are getting help gives great satisfaction,” she added.
Haemophiliacs can get treatment with a substitute blood factor that helps the blood clot, lessening risks and easing pain.
“When they are feeling well and saying aunty, aunty stay with us, play and dance with us, the smiles on their faces make all this work we are doing worthwhile,” she said.
Money made from the dinner dance evening on April 17, which will include an appearance from Anita Rani, will be split between the building project in India and the Bradford Haemophilia Centre.
There will also be other fundraising events coming up throughout the year.
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