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Appeal launched for girl with rare form of epilepsy
A charity appeal to help a toddler suffering from a rare form of epilepsy has been launched by her family.
Two-year-old Aimee Franklands, of Calverley, is affected by the genetic condition Dravet Syndrome, which causes regular seizures and other issues such as sleeping and speech difficulties.
Miss Franklands' mother, Karen, said her daughter was only diagnosed when she visited a specialist at London’s Great Ormond Street Hospital in June, despite having seizures since she was three months old.
“We thought it might be something she would eventually grow out of, but it is not. It was quite a shock,” she said.
“It is hard work at times. Her seizures can be very upsetting, especially when she hurts herself. But she is always a happy little girl, full of smiles and mischief. Her condition never gets her down, she is always playing.”
The family initially launched the appeal in conjunction with the Caudwell children’s charity to raise money for a Carousel Therapy Tricycle, costing more than £1,000, to help her play outdoors where she normally struggles with balance and co-ordination.
Mrs Franklands said: “It will mean so much to be able to give her the opportunity to go out and ride her bike, just like other children.”
Mrs Franklands, who also has a four- year-old son named William, said she hoped to continue the link with Caudwell to help raise awareness of the condition.
“The more help we can get, the more people who are may be unaware of Dravet Syndrome may come forward, which would be great for everybody affected by it,” she said.
Caudwell Children, founded by entrepreneur John Caudwell and based in Stoke-on-Trent, has provided services worth over £23 million to thousands of children with nearly 500 different medical conditions.
To support the appeal please visit www.justgiving.com/aimeesappeal or text AIFR57£(amount) to 70070.