Wyke couple Joe Lyons and Danielle Bannister raise funds for Cystic Fibrosis Trust (From Bradford Telegraph and Argus)
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Wyke couple Joe Lyons and Danielle Bannister raise funds for Cystic Fibrosis Trust
11:00am Thursday 22nd August 2013 in News
A family whose seven-month-old son has cystic fibrosis have started a fundraising quest to help pioneer a cure for the life-limiting condition.
Joe Lyons and Danielle Bannister, both 21, discovered their first child, Jacob, had the genetic illness after a month of tests and operations when he became sick at just a few days old.
They now want to raise money for the Cystic Fibrosis Trust, which is researching a new gene therapy which could raise the life expectancy of those with the chronic condition from 37 to 60.
Mr Lyons, of Wyke, said: “We had a healthy pregnancy and birth and left the hospital as a happy family unit.
“But in the first few days of Jacob’s life he became very ill and lost much of his birth weight and was admitted to Leeds General Infirmary.
“After numerous tests and x-rays, it was found that Jacob had a blockage in the bowels, known as meconium ileus, which required a six-hour surgical procedure at four days old.
“An ileostomy was formed and his bowels remained on the outside for five weeks, when another five hour surgery took place at only six weeks old for reconnection.
“When Jacob was diagnosed with meconium ileus, which occurs in approximately one in 100,000 births, we were informed that he had a 90 per cent chance of having cystic fibrosis. After waiting two weeks for the DNA results to arrive, on February 14, Jacob received his full diagnosis and cystic fibrosis was confirmed.”
Cystic fibrosis is a condition mainly affecting the lungs and digestive system and there is a one in four chance a child will be born with the illness when both parents carry a faulty gene.
A person with cystic fibrosis has to take daily medication involving antibiotics, vitamins and digestive enzymes with every meal and has daily physiotherapy to try and move the mucous around their lungs.
The family has organised a charity day at The White Swan in Wibsey on Sunday, with children’s games, waxing, head shaving, auctions, raffles, a barbecue and a live band from noon until late. On Saturday, there will be a fundraising football match and a race night will be held the following Friday, August 30, at the pub.